Pirates Fundraiser With Marianne Cornetti​

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...

2018 NFCA Golf Outing

Join us for the 2018 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 3 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $135 per golfer Registration: Check back soon for registration form. The entry...

Fundraising For Walk In The Wild

There is still time to join us for the 24th Annual Walk in the Wild and help with fundraising! Date: Saturday, April 28 Time: Registration begins at 7:00 a.m. Walk begins at 9:00 a.m. Location: Pittsburgh Zoo & PPG Aquarium Download the sponsor form to get started. You can use this link to...

Thanks To The 5 Goal Gang

Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

Pittsburgh Pirates Fundraiser

Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...