2018 NFCA Golf Outing

Join us for the 2018 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 3 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $135 per golfer Registration: Download the registration form then follow instructions to...

Thanks To The 5 Goal Gang

Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...

Pirates Fundraiser With Marianne Cornetti​

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

Pittsburgh Pirates Fundraiser

Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...

Using GoFundMe For Fundraising

The Corlls setup a GoFundMe page for the walk and they’ve already raised close to $800! They also tapped into family and local friends to raise NF awareness and donations by setting up a lemonade stand, placing milk cartons at school and hosting a table at a community spaghetti...