Pirates Fundraiser With Marianne Cornetti

Posted on: May 18, 2018 by: webmaster

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...

Hockey Tournament and Basket Party Benefits NFCA

Posted on: April 11, 2018 by: webmaster

The “5 Goal Gang” is hosting their 8th Annual Hockey Tournament and Basket Party on June 3 with proceeds benefitting the NFCA! Details in the flyer below.

Pfizer Spin Off To Study NF

Posted on: September 27, 2017 by: webmaster

Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.

Pittsburgh Pirates Fundraiser

Posted on: August 16, 2017 by: webmaster

Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...

Photos of Walk in the Wild

Posted on: May 5, 2017 by: webmaster

Thanks to all of you who joined us for the 23rd Annual Walk in the Wild fundraiser! Use this link to see the photo album.

Using GoFundMe For Fundraising

Posted on: March 27, 2017 by: webmaster

The Corlls setup a GoFundMe page for the walk and they’ve already raised close to $800! They also tapped into family and local friends to raise NF awareness and donations by setting up a lemonade stand, placing milk cartons at school and hosting a table at a community spaghetti...

Clinical Trial of Selumetinib

Posted on: January 10, 2017 by: webmaster

A phase I clinical trial of Selumetinib has shown some early promising results in children diagnosed with NF1. read more at “New Drug Shrinks Pediatric Tumors“.

A Passionate Pursuit To Cure NF

Posted on: November 2, 2016 by: webmaster

Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.

2016 NFCA Annual Luncheon

Posted on: October 18, 2016 by: webmaster

The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...