Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.
Former WWE wrestler, Zach Gowen, announces plans to start a nonprofit, sports entertainment company focused on raising awareness and funding the research efforts of childhood illnesses including NF. Read more at “Professional wrestling promotion to raise funds for children in need“.
Interesting video, “Nick Gilbert: Life with Neurofibromatosis”, produced through Michigan State University – Journalism undergraduate program.
Want to get a head start on holiday shopping and help the NFCA at the same time? Use this Amazon Smile link before shopping at Amazon and they will donate a portion of your eligible purchases to Neurofibromatosis Clinics Associates, Inc.
Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...
Kara Kramer and some of her sorority sisters doing a pledge service project related to Neurofibromatosis for Gamma Sigma Sigma at Slippery Rock University. Nice work raising awareness about NF!
Great story about Jeff Hanson, a young artist with NF who is legally blind, “A Blind Artist’s Altruistic Vision“.
When you have a minute please consider providing a quick review and sharing your experiences with the NFCA on GreatNonprofits using this link.
You can contact Congress by March 20 to let them know that federal funding for NF research is important to you. See the message below for a little more info and use this link to “Voice Your Support For NF Research“. Dear NF Friends Old and New, Every March...