NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

Sign Up For NF Registry


If you or your child have NF1, NF2, or Schwannomatosis, please consider signing up for the NF Registry using this link. It was created by the Children’s Tumor Foundation in 2012 to serve as a resource for information on NF. Each registration can help them build and strengthen the NF...

Get Started With GoodSearch


Have you ever used GoodSearch? You may want to consider making them the homepage for your browser. They’ll donate to your cause when you search the web or shop at over 5,000+ online stores! Just setup your account and you can select NFCA as the charitable organization you want to...