A phase I clinical trial of Selumetinib has shown some early promising results in children diagnosed with NF1. read more at “New Drug Shrinks Pediatric Tumors“.
If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.
Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.
The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...
Mount St. Joseph University in Ohio signs boy with NF to their football team for a special day. Click the image below to read the article.
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
We ended up with a great weekend for the NFCA golf outing! Thanks again to everyone who joined us.
Blacktie Pittsburgh took some great photos at the “Bowling Over NF” fundraiser this past weekend. Use this link or click the image below to view the full photo album.