Pittsburgh Pirates Fundraiser

Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti​‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...

Save the Date – NFCA Golf Scramble

Join us for the NFCA Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 2, 2019 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: coming soon Registration: check back closer to the date of the golf outing to...

6th Annual Walk at the Isle

Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2019 for...

25th Annual Walk in the Wild

Thank you to everyone who participated in our 25th Annual Walk in the Wild fundraiser. The event took place on May 4, 2019 at Pittsburgh Zoo & PPG Aquarium and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2019...

Save The Dates!

Dates have been set for the following 2019 fundraising events. Hope you can join us! Walk in the Wild on May 4, 2019 Walk at the Isle on June 15, 2019 The Ann Kramer Memorial NF Golf Scramble on August 2, 2019 Visit each event page for more information. As we get closer to the event...

Thanks To The 5 Goal Gang

Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.