Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
Our 1st Annual Fajita Fest fundraiser was a huge success. We hosted it at Mad Mex on Saturday, June 14. Check back in early 2017 for details on the 2nd Annual Fajita Fest. Use this link to see all of the photos in our Facebook album.
Thanks to all of you who joined us for the 3rd Annual Walk at the Isle fundraiser this past week! Use this link or click below to view the photo album.
Enjoy a night out at PNC Park on June 22 as international-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 14 year old niece, Marykate, was diagnosed with the disease...
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
Join us for the 3rd Annual “Walk at the Isle” fundraiser! Date: Saturday, June 11 Time: Registration begins at 8:00 a.m. Walk begins at 9:00 a.m. Location: Presque Isle State Park at Beach One Download the sponsor form to begin fundraising. Proceeds benefit the Neurofibromatosis Clinics Association (NFCA).
Join us Tuesday, June 14 from 7:00-9:00 pm at Mad Mex on South Highland Avenue for the “Build Your Own Fajita Party”! Space is limited so use this flyer to RSVP. Proceeds benefit the NFCA.
Here is the NF Symposium Brochure for Saturday April 9, 2016. The event will be hosted from 8:00-4:00 p.m. at the Rangos Research Center in Lawrenceville. You can attend part of the day instead of the full day if you prefer. Please register so we have an accurate count for lunches and refreshments. Register for...
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.