The NFCA proudly welcomed WTAE News Anchor, Andrew Stockey, as our official Master of Ceremonies for this year’s Walk in the Wild! About Andrew: Andrew Stockey co-anchors Pittsburgh’s Action News 4 weekdays at 4 p.m. and 5 p.m. and anchors sports at 6 p.m. and 11 p.m. Andrew has...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Walk in the Wild Moved to 2021
Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...
Thanks For Attending – Walk at the Isle
Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020 for...
Pittsburgh Pirates Fundraiser
Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...
Walk in the Wild – Thanks For Attending
Thank you to everyone who participated in our 25th Annual Walk in the Wild fundraiser. The event took place on May 4, 2019 at Pittsburgh Zoo & PPG Aquarium and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020...
Thanks To The 5 Goal Gang
Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...
Photos From NFCA Pirates Night
NFCA night with the Pirates. Marianne Cornetti and three additional opera stars blew out the stadium with the national anthem!
NF Registry
If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.
2018 NFCA Golf Outing
Join us for the 2018 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 3 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $135 per golfer Registration: Download the registration form then follow instructions to...