Walk in the Wild Moved to 2021

Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...

Pittsburgh Pirates Fundraiser

Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti​‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

Pirates Fundraiser With Marianne Cornetti​

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...