The “5 Goal Gang” is hosting their 8th Annual Hockey Tournament and Basket Party on June 3 with proceeds benefitting the NFCA! Details in the flyer below.
NFCA
Pittsburgh Pirates Fundraiser
Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...
Using GoFundMe For Fundraising
The Corlls setup a GoFundMe page for the walk and they’ve already raised close to $800! They also tapped into family and local friends to raise NF awareness and donations by setting up a lemonade stand, placing milk cartons at school and hosting a table at a community spaghetti...
2016 NFCA Annual Luncheon
The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...
MLB Player Raises Awareness For NF
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Blacktie Pittsburgh Coverage of NFCA Golf Outing
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
Fundraiser – Build Your Own Fajita Party
Join us Tuesday, June 14 from 7:00-9:00 pm at Mad Mex on South Highland Avenue for the “Build Your Own Fajita Party”! Space is limited so use this flyer to RSVP. Proceeds benefit the NFCA.
NF Symposium in Pittsburgh
Here is the NF Symposium Brochure for Saturday April 9, 2016. The event will be hosted from 8:00-4:00 p.m. at the Rangos Research Center in Lawrenceville. You can attend part of the day instead of the full day if you prefer. Please register so we have an accurate count for lunches and refreshments. Register for...
Former Wrestler Raising Fund For NF
Former WWE wrestler, Zach Gowen, announces plans to start a nonprofit, sports entertainment company focused on raising awareness and funding the research efforts of childhood illnesses including NF. Read more at “Professional wrestling promotion to raise funds for children in need“.
Video – Life with Neurofibromatosis
Interesting video, “Nick Gilbert: Life with Neurofibromatosis”, produced through Michigan State University – Journalism undergraduate program.