Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
We ended up with a great weekend for the NFCA golf outing! Thanks again to everyone who joined us.
Blacktie Pittsburgh took some great photos at the “Bowling Over NF” fundraiser this past weekend. Use this link or click the image below to view the full photo album.
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
Our 1st Annual Fajita Fest fundraiser was a huge success. We hosted it at Mad Mex on Saturday, June 14. Check back in early 2017 for details on the 2nd Annual Fajita Fest. Use this link to see all of the photos in our Facebook album.
Thanks to all of you who joined us for the 3rd Annual Walk at the Isle fundraiser this past week! Use this link or click below to view the photo album.
Enjoy a night out at PNC Park on June 22 as international-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 14 year old niece, Marykate, was diagnosed with the disease...
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.