Join us for the 2024 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 2 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $160 per person Registration: Download the signup form The entry fee...
News
News related to Neurofibromatosis.
Pittsburgh Marathon Wrap Up
We wanted to say a big THANK YOU to all our Pittsburgh Marathon participants who ran and raised money for the NFCA this past weekend. Thank you so much!
Photos from the 29th Annual Walk in the Wild
Thank you to everyone who participated in the 29th Annual Walk in the Wild fundraiser! The event took place on Saturday, April 20, 2024 at Pittsburgh Zoo & PPG Aquarium and was a big success. View the photo album of the 2024 event. Check back in early 2025 for details...
Photos from the 28th Annual Walk in the Wild
Thank you to everyone who participated in our 28th Annual Walk in the Wild fundraiser. The event took place on April 22, 2023 at Pittsburgh Zoo & Aquarium and was a big success! Check back in early 2024 for details on the 29th Annual Walk in the Wild. View the...
Welcome to Nichole Zimmerman!
The NFCA is super excited to welcome social worker Nichole Zimmerman to our family! Nichole will be continuing the services so wonderfully-provided by the now-retired Sinikka Davis! Please click here to see her introductory letter….it contains all of her contact information. I know that you will join us in...
Join the 2023 NFCA Marathon Team
Join the NFCA Run Team! NFCA is now an official charity with the Pittsburgh Marathon. Registration for marathon weekend events opened today! Run or walk the 5K, Half Marathon, Full Marathon, or Marathon Relay (Team of 5)…and help to raise money for NFCA. Visit the 2023 NFCA Pittsburgh Marathon...
Thanks to the Marathon Planning Committee & Runners
The NFCA wishes to give a huge shout-out to it’s first ever Pittsburgh Marathon Planning Committee – Will Hoffman, Jamie Hoffman, Ashley Hardy and Nolan Allen!!! Their tenacious efforts for organizing an NFCA running team for this past Pittsburgh Marathon weekend yielded stupendous results!! All of our goals –...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Pfizer Spin Off To Study NF
Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.
A Passionate Pursuit To Cure NF
Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.