The NFCA is super excited to welcome social worker Nichole Zimmerman to our family! Nichole will be continuing the services so wonderfully-provided by the now-retired Sinikka Davis! Please click here to see her introductory letter….it contains all of her contact information. I know that you will join us in...
News
News related to Neurofibromatosis.
Join the 2023 NFCA Marathon Team
Join the NFCA Run Team! NFCA is now an official charity with the Pittsburgh Marathon. Registration for marathon weekend events opened today! Run or walk the 5K, Half Marathon, Full Marathon, or Marathon Relay (Team of 5)…and help to raise money for NFCA. Visit the 2023 NFCA Pittsburgh Marathon...
Thanks to the Marathon Planning Committee & Runners
The NFCA wishes to give a huge shout-out to it’s first ever Pittsburgh Marathon Planning Committee – Will Hoffman, Jamie Hoffman, Ashley Hardy and Nolan Allen!!! Their tenacious efforts for organizing an NFCA running team for this past Pittsburgh Marathon weekend yielded stupendous results!! All of our goals –...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Pfizer Spin Off To Study NF
Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.
A Passionate Pursuit To Cure NF
Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.
2016 NFCA Annual Luncheon
The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...
College Team Signs Boy With NF
Mount St. Joseph University in Ohio signs boy with NF to their football team for a special day. Click the image below to read the article.
MLB Player Raises Awareness For NF
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Kids Setup Lemonade Stand For Friend
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.