NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

NF Funding At Risk of Elimination

Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...

Sign Up For NF Registry

If you or your child have NF1, NF2, or Schwannomatosis, please consider signing up for the NF Registry using this link. It was created by the Children’s Tumor Foundation in 2012 to serve as a resource for information on NF. Each registration can help them build and strengthen the NF...

Welcome To Our Blog

Welcome to the blog for the Neurofibromatosis Clinics Association (NFCA) of Pittsburgh, a regional, non-profit dedicated to serving people with NF and their families. Stay tuned for posts news and regional events related to Neurofibromatosis. If you’re a patient, family member, donor, volunteer or healthcare professional give us a follow.