The NFCA wishes to give a huge shout-out to it’s first ever Pittsburgh Marathon Planning Committee – Will Hoffman, Jamie Hoffman, Ashley Hardy and Nolan Allen!!! Their tenacious efforts for organizing an NFCA running team for this past Pittsburgh Marathon weekend yielded stupendous results!! All of our goals –...
2022 Walk At The Isle
Join us for the 2022 Walk at the Isle fundraiser! Date: Saturday, July 9 Time: Registration begins at 8:00 a.m. Walk begins at 9:00 a.m. Location: Presque Isle State Park at Beach One Click here to download the sponsor form and start fundraising today. Proceeds benefit the Neurofibromatosis Clinics Association (NFCA).
2022 NFCA Golf Scramble
Join us for the 2022 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 5 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: Coming soon Registration: Registration form coming soon The entry fee includes...
Hoffman Family Featured on Wake Up Warriors
Liam Hoffman’s family talk about how and why they’re raising money for the NFCA in this edition of Wake Up Warriors that recently appeared on PT TV!
The 27th Annual Walk in the Wild
Thank you to everyone who participated in our 27th Annual Walk in the Wild fundraiser. The event took place on April 23, 2022 at Pittsburgh Zoo & PPG Aquarium and was a big success! Check back in early 2023 for details on the 28th Annual Walk in the Wild. Proceeds...
Save The Dates!
Dates have been set for the following 2022 fundraising events. Hope you can join us! Walk in the Wild on April 23, 2022 The Ann Kramer Memorial NF Golf Scramble on August 5, 2022 Visit each event page for more information. As we get closer to the event date we’ll...
Thanks for Attending the 26th Annual Walk in the Wild
Thank you to everyone who participated in our 26th Annual Walk in the Wild fundraiser. The event took place on November 6, 2021 at Pittsburgh Zoo & PPG Aquarium and was a big success! Please commence your fundraising and return on April 23, 2022 for another great day at the...
Master of Ceremonies for Walk in the Wild
The NFCA proudly welcomed WTAE News Anchor, Andrew Stockey, as our official Master of Ceremonies for this year’s Walk in the Wild! About Andrew: Andrew Stockey co-anchors Pittsburgh’s Action News 4 weekdays at 4 p.m. and 5 p.m. and anchors sports at 6 p.m. and 11 p.m. Andrew has...
2020 NFCA Fall Giving Campaign
2020 has certainly been a challenging year for us all. The Neurofibromatosis Clinics Association (NFCA) is painfully feeling the economic crunch of cancelling all of the 2020 in-person fundraisers. Now, the NF community services that we know you have come to rely upon – our dedicated social services, tutoring...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...