Dates have been set for the following 2022 fundraising events. Hope you can join us! Walk in the Wild on April 23, 2022 The Ann Kramer Memorial NF Golf Scramble on August 5, 2022 Visit each event page for more information. As we get closer to the event date we’ll...
Thanks for Attending the 26th Annual Walk in the Wild
Thank you to everyone who participated in our 26th Annual Walk in the Wild fundraiser. The event took place on November 6, 2021 at Pittsburgh Zoo & PPG Aquarium and was a big success! Please commence your fundraising and return on April 23, 2022 for another great day at the...
Master of Ceremonies for Walk in the Wild
The NFCA proudly welcomed WTAE News Anchor, Andrew Stockey, as our official Master of Ceremonies for this year’s Walk in the Wild! About Andrew: Andrew Stockey co-anchors Pittsburgh’s Action News 4 weekdays at 4 p.m. and 5 p.m. and anchors sports at 6 p.m. and 11 p.m. Andrew has...
2021 NFCA Golf Scramble
Thanks to everyone who joined us for the the Annual NFCA Golf Scramble in memory of Ann Kramer, former NFCA Executive Director! The event took place on Friday, August 6, 2021 at Lindenwood Golf Club and was a big success! Check back in early 2022 for details on tour next golf outing....
2020 NFCA Fall Giving Campaign
2020 has certainly been a challenging year for us all. The Neurofibromatosis Clinics Association (NFCA) is painfully feeling the economic crunch of cancelling all of the 2020 in-person fundraisers. Now, the NF community services that we know you have come to rely upon – our dedicated social services, tutoring...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Walk in the Wild Moved to 2021
Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...
Thanks For Attending – Walk at the Isle
Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020 for...
Pittsburgh Pirates Fundraiser
Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...
Walk in the Wild – Thanks For Attending
Thank you to everyone who participated in our 25th Annual Walk in the Wild fundraiser. The event took place on May 4, 2019 at Pittsburgh Zoo & PPG Aquarium and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020...