Join us for the NFCA Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 6, 2021 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $145 per golfer Registration: check back closer to the date of the...
Save the Date – Walk in the Wild
We have a date set for the 26th Annual Walk in the Wild fundraiser! Please mark your calendar and plan on joining us. Date: Saturday, November 6, 2021 Time: Registration begins at 7:15 a.m. Walk begins at 9:00 a.m. All attendees MUST ENTER THE ZOO BY 8:45 a.m. Location: Pittsburgh Zoo & PPG Aquarium...
2020 NFCA Fall Giving Campaign
2020 has certainly been a challenging year for us all. The Neurofibromatosis Clinics Association (NFCA) is painfully feeling the economic crunch of cancelling all of the 2020 in-person fundraisers. Now, the NF community services that we know you have come to rely upon – our dedicated social services, tutoring...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Walk in the Wild Moved to 2021
Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...
Save The Dates!
Dates have been set for the following 2020 fundraising events. Hope you can join us! Walk in the Wild on May 2 2020 Walk at the Isle on June 6, 2020 The Ann Kramer Memorial NF Golf Scramble on August 7, 2020 Visit each event page for more information. As we get closer to the...
Thanks For Attending – Walk at the Isle
Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020 for...
Pittsburgh Pirates Fundraiser
Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...
Walk in the Wild – Thanks For Attending
Thank you to everyone who participated in our 25th Annual Walk in the Wild fundraiser. The event took place on May 4, 2019 at Pittsburgh Zoo & PPG Aquarium and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020...
Thanks To The 5 Goal Gang
Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...