Save The Dates!

Dates have been set for the following 2019 fundraising events. Hope you can join us! Walk in the Wild on May 4, 2019 Walk at the Isle on June 15, 2019 The Ann Kramer Memorial NF Golf Scramble on August 2, 2019 Visit each event page for more information. As we get closer to the event...

Thanks To The 5 Goal Gang

Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

2018 NFCA Golf Outing

Join us for the 2018 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 3 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $135 per golfer Registration: Download the registration form then follow instructions to...

Pirates Fundraiser With Marianne Cornetti​

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...

Pittsburgh Pirates Fundraiser

Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...