Dates have been set for the following 2019 fundraising events. Hope you can join us! Walk in the Wild on May 4 Walk at the Isle on June 25 The Ann Kramer Memorial NF Golf Scramble on August 2 Visit each event page for more information. As we get closer to the event date we’ll post...
Thanks To The 5 Goal Gang
Our heartfelt thanks go out to Jim Shaffer, Brian Kessler, the 5 Goal Gang and their friends! So much fun was had this past Sunday, 2/25/2018, at the 4th Annual 5 Goal Gang Bowling and Basket Party Fundraiser at Richland Lanes, Johnstown, PA! A fabulous afternoon of bowling, festivities...
Photos From NFCA Pirates Night
NFCA night with the Pirates. Marianne Cornetti and three additional opera stars blew out the stadium with the national anthem!
NF Registry
If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.
2018 NFCA Golf Outing
Join us for the 2018 Golf Scramble in memory of Ann Kramer, former NFCA Executive Director. Date: Friday, August 3 Time: 9:00 a.m. Tee-Off (8:00 a.m. Registration) Location: Lindenwood Golf Club at 360 Gallery Road, Canonsburg, PA 15317 Price: $135 per golfer Registration: Download the registration form then follow instructions to...
Pirates Fundraiser With Marianne Cornetti
Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...
Hockey Tournament and Basket Party Benefits NFCA
The “5 Goal Gang” is hosting their 8th Annual Hockey Tournament and Basket Party on June 3 with proceeds benefitting the NFCA! Details in the flyer below.
Pfizer Spin Off To Study NF
Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.
Pittsburgh Pirates Fundraiser
Enjoy a night out at PNC Park on September 5 as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 15 year old niece, Marykate, was diagnosed with the disease...
Photos of Walk in the Wild
Thanks to all of you who joined us for the 23rd Annual Walk in the Wild fundraiser! Use this link to see the photo album.