5th Annual Bowling Over NF

Posted on: March 5, 2015 by: webmaster

A snow day like this is a great time to plan your summer activities! Please save the date for our “5th Annual Bowling Over NF” fundraiser. This year’s event will be held on Sunday, July 26 at Paradise Island Bowl. Use this link for more info.

Email Update

Posted on: March 5, 2015 by: webmaster

We’ve had a few technical issues recently with email. We apologize if you’ve emailed us over the last few weeks and have not received a response. The issue is now resolved. But if you sent a message to info@nfpittsburgh.org or nfsocialworker@nfpittsburgh.org recently please try to resend your message now....

Walk in the Wild Sponsor Form

Posted on: February 28, 2015 by: webmaster

Here is the sponsor form for our 21st Annual Walk in the Wild that is coming up on May 2. Let the fundraising begin!

T-Shirt Design

Posted on: February 16, 2015 by: webmaster

Here is a preview of the t-shirt design for this year’s “Walk in the WIld”. Save the date for May 2 at Pittsburgh Zoo & PPG Aquarium!

Walk in the Wild

Posted on: February 4, 2015 by: webmaster

We have a date set for the 21st Annual Walk in the Wild! Join us May 2 at Pittsburgh Zoo & PPG Aquarium. Registration begins at 7:00am. The walk begins at 9:00am. View the full invitation.

Core Strengthening Tips For Kids

Posted on: January 29, 2015 by: webmaster

Here are a few Core Strengthening Exercises for Kids, since low muscle can be an issue with NF.

Executive Functioning Issues

Posted on: January 20, 2015 by: webmaster

Interesting article on how children with executive functioning issues and how they may think differently, How Does A Child with Executive Functioning Issues Think Differently?.

Sign Up For NF Registry

Posted on: January 13, 2015 by: webmaster

If you or your child have NF1, NF2, or Schwannomatosis, please consider signing up for the NF Registry using this link. It was created by the Children’s Tumor Foundation in 2012 to serve as a resource for information on NF. Each registration can help them build and strengthen the NF...