Thanks to all of you who joined us for the 23rd Annual Walk in the Wild fundraiser! Use this link to see the photo album.
Neurofibromatosis
Using GoFundMe For Fundraising
The Corlls setup a GoFundMe page for the walk and they’ve already raised close to $800! They also tapped into family and local friends to raise NF awareness and donations by setting up a lemonade stand, placing milk cartons at school and hosting a table at a community spaghetti...
Clinical Trial of Selumetinib
A phase I clinical trial of Selumetinib has shown some early promising results in children diagnosed with NF1. read more at “New Drug Shrinks Pediatric Tumors“.
A Passionate Pursuit To Cure NF
Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.
2016 NFCA Annual Luncheon
The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...
College Team Signs Boy With NF
Mount St. Joseph University in Ohio signs boy with NF to their football team for a special day. Click the image below to read the article.
MLB Player Raises Awareness For NF
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Kids Setup Lemonade Stand For Friend
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Blacktie Pittsburgh Coverage of NFCA Golf Outing
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
Golf Outing Photos
We ended up with a great weekend for the NFCA golf outing! Thanks again to everyone who joined us.