Thanks again to Marianne Cornetti for her Pirates / NFCA fundraiser. We were fortunate to have been at the park to see her perform the national anthem. Wow! A beautiful talent, a beautiful person. You can watch the video of her performance using this link https://goo.gl/yMo1Gh or by clicking below.
Neurofibromatosis
NF Funding At Risk of Elimination
Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...
Helpful Resource on Assistance Dogs
If you want to learn more about Assistance Dogs this is a helpful website, Dog Guard: Guide To Service Dogs. They provide an overview of the different services available along with links for guide dogs, hearing dogs and other resources.
Walk at the Isle Fundraiser
Join us for the 2nd Annual “Walk at the Isle” fundraiser! Date: Saturday, June 20 Time: Registration begins at 8:00 a.m. Walk begins at 9:30 a.m. Location: Presque Isle State Park at Beach One Download the sponsor form to begin fundraising. Proceeds benefit the Neurofibromatosis Clinics Association (NFCA).
Pittsburgh Pirates Fundraiser
Enjoy a night at PNC Park on June 26 as Marianne Cornetti performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 13 year old niece, Marykate, was diagnosed with the disease at a very young age. Download this...
Walk in the Wild Photos
Thanks again to everyone who attended the 21st Annual Walk in the Wild! We had lot’s of photos taken. You can use this link to view the Facebook album and this link to view the BlacktiePhotos page.
Mother’s Day Shopping (and Giving)
Looking for Mother’s Day gift ideas? You can use this Amazon Smile link to shop and they’ll donate a portion of your purchases to the NFCA.
Raising Awareness for Neurofibromatosis
Kara Kramer and some of her sorority sisters doing a pledge service project related to Neurofibromatosis for Gamma Sigma Sigma at Slippery Rock University. Nice work raising awareness about NF!
A Blind Artist’s Altruistic Vision
Great story about Jeff Hanson, a young artist with NF who is legally blind, “A Blind Artist’s Altruistic Vision“.
Review NFCA on GreatNonprofits
When you have a minute please consider providing a quick review and sharing your experiences with the NFCA on GreatNonprofits using this link.