On Saturday, March 7, a few members of our community shared fellowship and bowling fun at Fun Fest Entertainment Center in Harmarville. A great time was had by all – whether bowling, playing laser tag, playing in the arcade, or just eating some pizza and hanging out with friends! Here...
Neurofibromatosis
Federal Funding for NF Research
You can contact Congress by March 20 to let them know that federal funding for NF research is important to you. See the message below for a little more info and use this link to “Voice Your Support For NF Research“. Dear NF Friends Old and New, Every March...
5th Annual Bowling Over NF
A snow day like this is a great time to plan your summer activities! Please save the date for our “5th Annual Bowling Over NF” fundraiser. This year’s event will be held on Sunday, July 26 at Paradise Island Bowl. Use this link for more info.
Email Update
We’ve had a few technical issues recently with email. We apologize if you’ve emailed us over the last few weeks and have not received a response. The issue is now resolved. But if you sent a message to info@nfpittsburgh.org or nfsocialworker@nfpittsburgh.org recently please try to resend your message now....
Walk in the Wild Sponsor Form
Here is the sponsor form for our 21st Annual Walk in the Wild that is coming up on May 2. Let the fundraising begin!
T-Shirt Design
Here is a preview of the t-shirt design for this year’s “Walk in the WIld”. Save the date for May 2 at Pittsburgh Zoo & PPG Aquarium!
Core Strengthening Tips For Kids
Here are a few Core Strengthening Exercises for Kids, since low muscle can be an issue with NF.
Executive Functioning Issues
Interesting article on how children with executive functioning issues and how they may think differently, How Does A Child with Executive Functioning Issues Think Differently?.
Sign Up For NF Registry
If you or your child have NF1, NF2, or Schwannomatosis, please consider signing up for the NF Registry using this link. It was created by the Children’s Tumor Foundation in 2012 to serve as a resource for information on NF. Each registration can help them build and strengthen the NF...
Social Emotional Development in NF
Here is a webinar recently presented by the Neurofibromatosis Network looking at “Social Emotional Development in NF“. Their speaker was Sandy Cushner-Weinstein a social worker from the Children’s National Medical Center and director of Camp New Friends.