Here is a preview of the t-shirt design for this year’s “Walk in the WIld”. Save the date for May 2 at Pittsburgh Zoo & PPG Aquarium!
Pittsburgh
Walk in the Wild
We have a date set for the 21st Annual Walk in the Wild! Join us May 2 at Pittsburgh Zoo & PPG Aquarium. Registration begins at 7:00am. The walk begins at 9:00am. View the full invitation.
Core Strengthening Tips For Kids
Here are a few Core Strengthening Exercises for Kids, since low muscle can be an issue with NF.
Executive Functioning Issues
Interesting article on how children with executive functioning issues and how they may think differently, How Does A Child with Executive Functioning Issues Think Differently?.
Sign Up For NF Registry
If you or your child have NF1, NF2, or Schwannomatosis, please consider signing up for the NF Registry using this link. It was created by the Children’s Tumor Foundation in 2012 to serve as a resource for information on NF. Each registration can help them build and strengthen the NF...
Social Emotional Development in NF
Here is a webinar recently presented by the Neurofibromatosis Network looking at “Social Emotional Development in NF“. Their speaker was Sandy Cushner-Weinstein a social worker from the Children’s National Medical Center and director of Camp New Friends.
Happy New Year!
Happy New Year! We hope the upcoming year is an inspiring one for each of you.
Happy Holidays!
Happy holidays from our family to yours! We hope it is filled with joy and laughter.
Get Started With GoodSearch
Have you ever used GoodSearch? You may want to consider making them the homepage for your browser. They’ll donate to your cause when you search the web or shop at over 5,000+ online stores! Just setup your account and you can select NFCA as the charitable organization you want to...
NF2 Apps
Here is a look at the use of technology to support communication for people with NF2, What’s App Doc? The Use of Technology to Support Communication for People with NF2.