Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.
Former WWE wrestler, Zach Gowen, announces plans to start a nonprofit, sports entertainment company focused on raising awareness and funding the research efforts of childhood illnesses including NF. Read more at “Professional wrestling promotion to raise funds for children in need“.
Interesting video, “Nick Gilbert: Life with Neurofibromatosis”, produced through Michigan State University – Journalism undergraduate program.
Want to get a head start on holiday shopping and help the NFCA at the same time? Use this Amazon Smile link before shopping at Amazon and they will donate a portion of your eligible purchases to Neurofibromatosis Clinics Associates, Inc.
Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...