Kara Kramer and some of her sorority sisters doing a pledge service project related to Neurofibromatosis for Gamma Sigma Sigma at Slippery Rock University. Nice work raising awareness about NF!
News
News related to Neurofibromatosis.
A Blind Artist’s Altruistic Vision
Great story about Jeff Hanson, a young artist with NF who is legally blind, “A Blind Artist’s Altruistic Vision“.
Review NFCA on GreatNonprofits
When you have a minute please consider providing a quick review and sharing your experiences with the NFCA on GreatNonprofits using this link.
Federal Funding for NF Research
You can contact Congress by March 20 to let them know that federal funding for NF research is important to you. See the message below for a little more info and use this link to “Voice Your Support For NF Research“. Dear NF Friends Old and New, Every March...
Email Update
We’ve had a few technical issues recently with email. We apologize if you’ve emailed us over the last few weeks and have not received a response. The issue is now resolved. But if you sent a message to info@nfpittsburgh.org or nfsocialworker@nfpittsburgh.org recently please try to resend your message now....
Executive Functioning Issues
Interesting article on how children with executive functioning issues and how they may think differently, How Does A Child with Executive Functioning Issues Think Differently?.
Social Emotional Development in NF
Here is a webinar recently presented by the Neurofibromatosis Network looking at “Social Emotional Development in NF“. Their speaker was Sandy Cushner-Weinstein a social worker from the Children’s National Medical Center and director of Camp New Friends.
Happy New Year!
Happy New Year! We hope the upcoming year is an inspiring one for each of you.
Happy Holidays!
Happy holidays from our family to yours! We hope it is filled with joy and laughter.
NF2 Apps
Here is a look at the use of technology to support communication for people with NF2, What’s App Doc? The Use of Technology to Support Communication for People with NF2.