Interesting video, “Nick Gilbert: Life with Neurofibromatosis”, produced through Michigan State University – Journalism undergraduate program.
News
News related to Neurofibromatosis.
Shop With Amazon Smile
Want to get a head start on holiday shopping and help the NFCA at the same time? Use this Amazon Smile link before shopping at Amazon and they will donate a portion of your eligible purchases to Neurofibromatosis Clinics Associates, Inc.
NF Funding At Risk of Elimination
Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...
Raising Awareness for Neurofibromatosis
Kara Kramer and some of her sorority sisters doing a pledge service project related to Neurofibromatosis for Gamma Sigma Sigma at Slippery Rock University. Nice work raising awareness about NF!
A Blind Artist’s Altruistic Vision
Great story about Jeff Hanson, a young artist with NF who is legally blind, “A Blind Artist’s Altruistic Vision“.
Review NFCA on GreatNonprofits
When you have a minute please consider providing a quick review and sharing your experiences with the NFCA on GreatNonprofits using this link.
Federal Funding for NF Research
You can contact Congress by March 20 to let them know that federal funding for NF research is important to you. See the message below for a little more info and use this link to “Voice Your Support For NF Research“. Dear NF Friends Old and New, Every March...
Email Update
We’ve had a few technical issues recently with email. We apologize if you’ve emailed us over the last few weeks and have not received a response. The issue is now resolved. But if you sent a message to info@nfpittsburgh.org or nfsocialworker@nfpittsburgh.org recently please try to resend your message now....
Executive Functioning Issues
Interesting article on how children with executive functioning issues and how they may think differently, How Does A Child with Executive Functioning Issues Think Differently?.
Social Emotional Development in NF
Here is a webinar recently presented by the Neurofibromatosis Network looking at “Social Emotional Development in NF“. Their speaker was Sandy Cushner-Weinstein a social worker from the Children’s National Medical Center and director of Camp New Friends.