Join us for the 29th Annual Walk in the Wild fundraiser! Date: Saturday, April 20, 2024 Time: Registration begins at 7:15 a.m. Walk begins at 9:00 a.m. All attendees MUST ENTER THE ZOO BY 8:45 a.m. Location: Pittsburgh Zoo & PPG Aquarium Click here to download the sponsor form and begin fundraising. View the...
Neurofibromatosis
Welcome to Nichole Zimmerman!
The NFCA is super excited to welcome social worker Nichole Zimmerman to our family! Nichole will be continuing the services so wonderfully-provided by the now-retired Sinikka Davis! Please click here to see her introductory letter….it contains all of her contact information. I know that you will join us in...
The 2023 Event Dates Have Been Announced
Our 2023 event dates have been announced. Please mark your calendar! Walk in the Wild on April 22, 2023 Dick’s Sporting Goods Pittsburgh Marathon on May 6-7, 2023 The Ann Kramer Memorial NF Golf Scramble on August 4, 2023 Walk in the Park on October 7, 2023 Quarterly Family...
Thanks to the Marathon Planning Committee & Runners
The NFCA wishes to give a huge shout-out to it’s first ever Pittsburgh Marathon Planning Committee – Will Hoffman, Jamie Hoffman, Ashley Hardy and Nolan Allen!!! Their tenacious efforts for organizing an NFCA running team for this past Pittsburgh Marathon weekend yielded stupendous results!! All of our goals –...
Hoffman Family Featured on Wake Up Warriors
Liam Hoffman’s family talk about how and why they’re raising money for the NFCA in this edition of Wake Up Warriors that recently appeared on PT TV!
The 27th Annual Walk in the Wild
Thank you to everyone who participated in our 27th Annual Walk in the Wild fundraiser. The event took place on April 23, 2022 at Pittsburgh Zoo & PPG Aquarium and was a big success! Check back in early 2023 for details on the 28th Annual Walk in the Wild. Proceeds...
Master of Ceremonies for Walk in the Wild
The NFCA proudly welcomed WTAE News Anchor, Andrew Stockey, as our official Master of Ceremonies for this year’s Walk in the Wild! About Andrew: Andrew Stockey co-anchors Pittsburgh’s Action News 4 weekdays at 4 p.m. and 5 p.m. and anchors sports at 6 p.m. and 11 p.m. Andrew has...
New FDA approval for plexiform tumor treatment with selumetinibsi
On April 10, 2020, the Food and Drug Administration approved selumetinib (KOSELUGO, AstraZeneca) for pediatric patients, 2 years of age and older, with neurofibromatosis type 1 (NF1) who have symptomatic, inoperable plexiform neurofibromas (PN). Selumetinib, a kinase inhibitor, is the first therapy approved for pediatric patients who have this...
Walk in the Wild Moved to 2021
Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...
Thanks For Attending – Walk at the Isle
Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020 for...