Thank you to everyone who participated in our 27th Annual Walk in the Wild fundraiser. The event took place on April 23, 2022 at Pittsburgh Zoo & PPG Aquarium and was a big success! Check back in early 2023 for details on the 28th Annual Walk in the Wild. Proceeds...
NF
Walk in the Wild Moved to 2021
Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...
Thanks For Attending – Walk at the Isle
Thanks to everyone who joined us for the 6th Annual “Walk at the Isle” fundraiser! The event took place on June 15, 2019 at Presque Isle State Park and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020 for...
Pittsburgh Pirates Fundraiser
Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...
Walk in the Wild – Thanks For Attending
Thank you to everyone who participated in our 25th Annual Walk in the Wild fundraiser. The event took place on May 4, 2019 at Pittsburgh Zoo & PPG Aquarium and was a big success! You can use this link to view the Facebook photo album of the event. Check back in early 2020...
Photos From NFCA Pirates Night
NFCA night with the Pirates. Marianne Cornetti and three additional opera stars blew out the stadium with the national anthem!
NF Registry
If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.
Pirates Fundraiser With Marianne Cornetti
Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...
Hockey Tournament and Basket Party Benefits NFCA
The “5 Goal Gang” is hosting their 8th Annual Hockey Tournament and Basket Party on June 3 with proceeds benefitting the NFCA! Details in the flyer below.
Pfizer Spin Off To Study NF
Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.