2021 NFCA Golf Scramble

Thanks to everyone who joined us for the the Annual NFCA Golf Scramble in memory of Ann Kramer, former NFCA Executive Director! The event took place on Friday, August 6, 2021 at Lindenwood Golf Club and was a big success! Check back in early 2022 for details on tour next golf outing....

Walk in the Wild Moved to 2021

Greetings to all our valued friends. We hope you and your families continue to stay safe and well. After deliberating countless hours, and due to global uncertainties and extremely limited Zoo availability, the NFCA has sadly decided to push the 26th Annual Walk in the Wild to 2021. This...

Save The Dates!

Dates have been set for the following 2020 fundraising events. Hope you can join us! Walk in the Wild on May 2 2020 Walk at the Isle on June 6, 2020 The Ann Kramer Memorial NF Golf Scramble on August 7, 2020 Visit each event page for more information. As we get closer to the...

Pittsburgh Pirates Fundraiser

Enjoy an evening out at PNC Park on Wednesday, July 3rd as Marianne Cornetti​‘s dear friend Kevin Ray, performs the National Anthem in her absence before the Pirates game. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her niece, MaryKate, was diagnosed with the disease...

NF Registry

If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.

Pirates Fundraiser With Marianne Cornetti​

Enjoy a day out at PNC Park on Sunday, June 24th as internationally-recognized opera singer and Pittsburgh native, Marianne Cornetti​, performs the National Anthem. Proceeds will benefit the NFCA! The NFCA is near and dear to Marianne’s heart as her 16 year old niece, Marykate, was diagnosed with the disease at...