Mount St. Joseph University in Ohio signs boy with NF to their football team for a special day. Click the image below to read the article.
Pittsburgh
MLB Player Raises Awareness For NF
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Kids Setup Lemonade Stand For Friend
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Blacktie Pittsburgh Coverage of NFCA Golf Outing
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
Golf Outing Photos
We ended up with a great weekend for the NFCA golf outing! Thanks again to everyone who joined us.
Photos of Bowling Over NF Fundraiser
Blacktie Pittsburgh took some great photos at the “Bowling Over NF” fundraiser this past weekend. Use this link or click the image below to view the full photo album.
New Study for Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
1st Annual Mad Mex Fajita Fest
Our 1st Annual Fajita Fest fundraiser was a huge success. We hosted it at Mad Mex on Saturday, June 14. Check back in early 2017 for details on the 2nd Annual Fajita Fest. Use this link to see all of the photos in our Facebook album.
Photos from Walk at the Isle.
Thanks to all of you who joined us for the 3rd Annual Walk at the Isle fundraiser this past week! Use this link or click below to view the photo album.
Pittsburgh Pirates Fundraiser
Enjoy a night out at PNC Park on June 22 as international-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 14 year old niece, Marykate, was diagnosed with the disease...