If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments.
Pfizer Spin Off To Study NF
Pfizer spins out SpringWorks Therapeutics to focus on diseases like Neurofibromatosis. Read more at “Pfizer Creates New Smaller Company to Focus on Rare Diseases“.
A Passionate Pursuit To Cure NF
Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.
New Study for Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
Senate Bill Threatens NF Research
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
NF Funding At Risk of Elimination
Senate amendment threatens Neurofibromatosis research. Take action today! The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment that, if passed, would severely restrict the types of medical research that could be funded by the...
Federal Funding for NF Research
You can contact Congress by March 20 to let them know that federal funding for NF research is important to you. See the message below for a little more info and use this link to “Voice Your Support For NF Research“. Dear NF Friends Old and New, Every March...