Here is a nice article on one woman’s passionate pursuit to cure NF, “NF Community – Network Spotlight“.
News
News related to Neurofibromatosis.
2016 NFCA Annual Luncheon
The NFCA’s Annual Luncheon was held Sunday, October 16 at The Hofbrauhaus at Southside Works. Members of our community gathered to offer each other support and fellowship. Cheering on the Steelers was an added bonus – even if it was for a loss to Miami! Dr. Amy Goldstein, Beth...
College Team Signs Boy With NF
Mount St. Joseph University in Ohio signs boy with NF to their football team for a special day. Click the image below to read the article.
MLB Player Raises Awareness For NF
Major League Baseball player raises awareness and funds for NF! See more at “Ian Desmond adds up the runs for neurofibromatosis awareness, donation“.
Kids Setup Lemonade Stand For Friend
Great story about a group of kids who recently setup a lemonade stand to raise money to help their friend who has NF! See the coverage at KTVB – Friends Support Boy with NF.
Blacktie Pittsburgh Coverage of NFCA Golf Outing
Thanks again to Blacktie Pittsburgh for these great photos of our annual golf outing! To see all the photos click View Photo Album.
New Study for Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
Senate Bill Threatens NF Research
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
Photos of Walk in the Wild
Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
Quicken Loans Founder
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.