We ended up with a great weekend for the NFCA golf outing! Thanks again to everyone who joined us.
NF
Photos of Bowling Over NF Fundraiser
Blacktie Pittsburgh took some great photos at the “Bowling Over NF” fundraiser this past weekend. Use this link or click the image below to view the full photo album.
New Study for Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
1st Annual Mad Mex Fajita Fest
Our 1st Annual Fajita Fest fundraiser was a huge success. We hosted it at Mad Mex on Saturday, June 14. Check back in early 2017 for details on the 2nd Annual Fajita Fest. Use this link to see all of the photos in our Facebook album.
Pittsburgh Pirates Fundraiser
Enjoy a night out at PNC Park on June 22 as international-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 14 year old niece, Marykate, was diagnosed with the disease...
Senate Bill Threatens NF Research
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
Photos of Walk in the Wild
Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
NF Symposium in Pittsburgh
Here is the NF Symposium Brochure for Saturday April 9, 2016. The event will be hosted from 8:00-4:00 p.m. at the Rangos Research Center in Lawrenceville. You can attend part of the day instead of the full day if you prefer. Please register so we have an accurate count for lunches and refreshments. Register for...
Quicken Loans Founder
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.
Former Wrestler Raising Fund For NF
Former WWE wrestler, Zach Gowen, announces plans to start a nonprofit, sports entertainment company focused on raising awareness and funding the research efforts of childhood illnesses including NF. Read more at “Professional wrestling promotion to raise funds for children in need“.