Blacktie Pittsburgh took some great photos at the “Bowling Over NF” fundraiser this past weekend. Use this link or click the image below to view the full photo album.
Neurofibromatosis
New Study for Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have pain that has lasted three months or more? Are you between the ages of 16 and 34 years? If you answered yes to all these questions, you may be eligible...
1st Annual Mad Mex Fajita Fest
Our 1st Annual Fajita Fest fundraiser was a huge success. We hosted it at Mad Mex on Saturday, June 14. Check back in early 2017 for details on the 2nd Annual Fajita Fest. Use this link to see all of the photos in our Facebook album.
Photos from Walk at the Isle.
Thanks to all of you who joined us for the 3rd Annual Walk at the Isle fundraiser this past week! Use this link or click below to view the photo album.
Pittsburgh Pirates Fundraiser
Enjoy a night out at PNC Park on June 22 as international-recognized opera singer and Pittsburgh native, Marianne Cornetti, performs the National Anthem. Proceeds will benefit the NFCA! This NFCA is near and dear to Marianne’s heart as her 14 year old niece, Marykate, was diagnosed with the disease...
Senate Bill Threatens NF Research
Senate bill threatens Neurofibromatosis research again! Use this link to learn more and take action now. Thanks.
Photos of Walk in the Wild
Thanks to all of you who joined us for the 22nd Annual Walk in the Wild fundraiser! Use this link to see the great coverage and photos by Black Tie Pittsburgh.
Fundraiser – Build Your Own Fajita Party
Join us Tuesday, June 14 from 7:00-9:00 pm at Mad Mex on South Highland Avenue for the “Build Your Own Fajita Party”! Space is limited so use this flyer to RSVP. Proceeds benefit the NFCA.
NF Symposium in Pittsburgh
Here is the NF Symposium Brochure for Saturday April 9, 2016. The event will be hosted from 8:00-4:00 p.m. at the Rangos Research Center in Lawrenceville. You can attend part of the day instead of the full day if you prefer. Please register so we have an accurate count for lunches and refreshments. Register for...
Quicken Loans Founder
Nice story about Quicken Loans founder, Dan Gilbert, and his efforts with NF. Read it at “Dan Gilbert’s Private Struggle: Conquering Neurofibromatosis“.